List of pilot European Reference Networks for Rare Diseases · Dyscerne: European Network of Centres of Reference for Dysmorphology · ECORN CF: European Centres of Reference Network for Cystic Fibrosis · PAAIR: Patient Associations and Alpha1 International Registry, · EPNET European Porphyria Network, · EN-RBD European Network of Rare Bleeding Disorders, Paediatric Hodgkins Lymphoma Network · NEUROPED: European Network of Reference for Rare Paediatric Neurological Diseases · EURO HISTIO NET: A reference network for Langerhans cell histiocytosis and associated syndrome in EU · TAG: Together Against Genodermatoses · CARE NMD: Dissemination ...[+++]and Implementation of the Standards of Care for Duchene muscular Dystrophy in Europe

2. The Network shall maintain relations with the European Consumer Centres Network (ECC-Net).

List of pilot European Reference Networks for Rare Diseases · Dyscerne: European Network of Centres of Reference for Dysmorphology · ECORN CF: European Centres of Reference Network for Cystic Fibrosis · PAAIR: Patient Associations and Alpha1 International Registry, · EPNET European Porphyria Network, · EN-RBD European Network of Rare Bleeding Disorders, Paediatric Hodgkins Lymphoma Network · NEUROPED: European Network of Reference for Rare Paediatric Neurological Diseases · EURO HISTIO NET: A reference network for Langerhans cell histiocytosis and associated syndrome in EU · TAG: Together Against Genodermatoses · CARE NMD: Dissemination ...[+++]and Implementation of the Standards of Care for Duchene muscular Dystrophy in Europe

( The adoption of an annual Enforcement Action Plan, introduced in 2008, should contribute to further focusing the Network’s activities. By using a stronger evidence base, drawing on data collected by the European Consumer Centres Network[17] and the Consumers Markets Scoreboard[18], as well as the information provided by national authorities, it will further strengthen and concentrate the activities undertaken by the Network. The annual plans should eventually be embedded in an overall framework of longer-term priorities agreed with Member States.

The Network is to liaise with similar networks and international organisations, such as the European Judicial Network in criminal matters, the European Judicial Training Network, the European Consumers Centres Network (ECC-Net), as well as judicial cooperation networks set up between third countries and with international organisations.

2. The Network shall maintain relations with the European Consumer Centres Network (ECC-Net).